بهترین پادکست های Ftd (2024)

1
FTD Semantic Variant 11:50

5d ago11:50

11:50

For National FTD Awareness Week Amy provides education and awareness on Frontotemporal Degeneration- the 4th leading cause of dementia. Each week Amy is covering a different type and variant of FTD. In this episode she talks about one of the types that starts with problems with understanding and producing language, the Semantic Variant or svFTD. Am…

1
Let’s talk about the nursing home transition… (Episode 114) 12:13

22h ago12:13

12:13

The nursing home transition can be very very hard, not only for the person who is moving to the residence, but for the caregiver too (in a big way). In today’s episode, Stephanie talks about this transition, the emotions behind nursing home transitions for caregivers and some helpful strategies that can help along the way. We want your feedback. Le…

1
EP 154: Pioneering early disease detection through wearable devices and regular monitoring with Dr. Mike Snyder 41:03

1d ago41:03

41:03

0:00 Introduction 1:00 Overview of Mike’s background and contributions to genomics and preventative medicine, as well as how he first became interested in deep data collection for health monitoring 4:20 The use of various tools, including smartwatches, blood tests, genetic testing, and more, to create a comprehensive view of an individual’s health …

1
Anticipatory Grief: Victoria's Story 46:06

4d ago46:06

46:06

Victoria openly shares the brutality of anticipatory grief, the unending love she has for her mama and the ways she got to know herself in the darkness. We were blown away. Please share this episode with someone you think needs to hear it. --- All things Remember Me Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠ Holding Sp…

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From The Pulpit: Episode 5 25:10

5d ago25:10

25:10

In this FTP, we answer the question "How Can The Christian Be Confident In Their Faith?" Preached September 1, 2024 @ New Home Baptist Church in New Home, Texas.توسط LJ Wright & Collin Britt

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Who is the CEO behind the Ontario Caregiver Organization and how is the OCO working with caregivers to provide the diverse support they need when they need it? With Amy Coupal (Episode 113) 39:05

8d ago39:05

39:05

There are over 4 million caregivers in Ontario, yet the Ontario Caregiver Organization (OCO), a government funded organization aimed to support this wide variety of caregivers, is still relatively new. In today’s episode, OCO CEO, Amy Coupal joins Stephanie on the podcast to talk about who she is behind her vocation, her caregiving experiences and …

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Navigating Dementia with Storytelling and Community Support 1:05:25

8d ago1:05:25

1:05:25

Navigating Dementia with Storytelling and Community Support Lori La Bey talks with Karen Murdock a Founding Partner of Treasured Photo Collections and Creator of Voiced Memories. She is a professional photo manager with extensive experience helping families preserve their most cherished memories, and a dedicated caregiver to a loved one with Lewy b…

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EP 153: How genomics is re-writing the taxonomy of disease with Lon Cardon, President and CEO of The Jackson Laboratory 40:25

9d ago40:25

40:25

0:00 Intro to The Genetics Podcast 01:00 Welcome to Lon 01:51 Lon’s involvement in the very first GWAS and what drew him to large-scale genomics research 03:32 Was moving away from candidate genes towards GWAS and data sharing initially a controversial idea? 05:25 What Lon believes has driven collaboration and data sharing within research communiti…

1
Steve 48:09

11d ago48:09

48:09

Our first episode of the season belongs to our new pal Scott. Through an open letter to his grief and the most beautiful love for his Dad, Scott openly recounts the experience of his father Steve's FTD journey - and his magnificent ability to explain what grief feels like will leave you speechless. We hope that Season 9 helps you feel less alone. S…

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From The Pulpit: Episode 4 20:54

12d ago20:54

20:54

In this FTP, we answer the question "How is it possible for the Christian to view death as gain?" Preached August 25, 2024 @ New Home Baptist Church in New Home, Texas.توسط LJ Wright & Collin Britt

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FTD: Frontaltemporal Degeneration 34:03

12d ago34:03

34:03

For National FTD Awareness Week Amy provides education and awareness on Frontaltemporal Degeneration- the 4th leading cause of dementia. Amy House, C.D.P. guides care partners in understanding how dementia affects the brain. This podcast has recorded questions from listeners. Each episode, Amy unpacks their questions and helps you learn to “think d…

1
Caregiving and navigating the healthcare system with both a neurotypical child and a child with autism and a rare genetic disease AND recognizing the true need for self-care along the way after extreme ... 43:36

15d ago43:36

43:36

Nicole Dauz imagined an idyllic future for her family of 4 after giving birth to her baby daughter. She soon realized that her vision of what would be looked very different in reality. In today’s episode, Nicole takes us through her journey caregiving for her kids, learning about navigating the system and care for a child with autism and a rare gen…

1
EP 152: Unlocking the secrets of gene regulation with Nadav Ahituv, Director of the Institute of Human Genetics at UCSF 42:40

16d ago42:40

42:40

01:15 - Introductions 02:02 - How our understanding of the non-coding genome has evolved throughout Nadav’s career 04:56 - Our current understanding of non-coding genome grammar 07:40 - Is there a missing piece to the common variant, common disease paradigm? 10:25 - Introducing ultraconserved elements (UCEs) and human accelerated regions (HARs) 12:…

1
Trailer | Season 9 of Remember Me 6:26

18d ago6:26

6:26

See what's in store for Remember Me Season 9... Follow us on Instagram for the latest RM news @remembermepodcast or visit us at www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

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From The Pulpit: Episode 3 11:14

19d ago11:14

11:14

In this FTP, we answer the question "What does God do when our obedience wanes?" Preached August 18, 2024 @ New Home Baptist Church in New Home, Texas.توسط LJ Wright & Collin Britt

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Introducing The New GUIDE Dementia Model Rolling Out In The US 1:39:39

20d ago1:39:39

1:39:39

Lori La Bey talks with Marty Agather the Vice President of Sales & Marketing for Embrace Prevention Care. In this role, he is responsible for leading the efforts of the company to connect with older adult patients, their caregivers, physicians, and other healthcare providers and payors. Embrace Prevention Care is a healthcare company that helps com…

1
Holidays and events are so hard since the loss of/ changes have transpired in my loved one (Episode 111) 10:00

22d ago10:00

10:00

The first, second, third…. times we experience a holiday or an event since changes or the loss of someone we love can be so hard. These moments and the anticipation of them can be so full of loss and grief and memories of what once was. In today’s episode, Stephanie talks about these moments, what they can feel like and what we can start to do to p…

1
On The Road with HFC | Reflections On The Caregiving Journey 26:33

22d ago26:33

26:33

We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers. Thank you to HFC for this special opportunity + for supporting our work at Remember Me. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠. And don't for…

1
EP 151: Understanding cell ageing and its role in disease with Marco Quarta Co-founder and CEO of Rubedo Life Sciences 42:36

23d ago42:36

42:36

0:00 Intro to The Genetics Podcast 01:00 Welcome to Marco 02:00 The areas Marco focused on during his academic career and what motivated him to found his first company 03:18 How our understanding of ageing has changed over the past two decades and some of the current big questions in ageing biology 06:01 How to get a clearer picture of the ageing p…

1
Old Mother Blackbird takes flight for celebrated singer songwriter Sophie Bancroft 47:42

25d ago47:42

47:42

Old Mother Blackbird takes flight for celebrated singer-songwriter Sophie Bancroft Lori La Bey talks with UK-based singer-songwriter Sophie Bancroft, whose award-winning short film - Old Mother Blackbird was recently included in a dementia-responsive program of short films, curated for long-haul flights as part of their inflight entertainment packa…

1
From The Pulpit: Episode 2 16:06

25d ago16:06

16:06

In this FTP, we answer the question "What do you do when you're knocked down in the Christian Life?" Preached August 11, 2024 @ New Home Baptist Church in New Home, Texas.توسط LJ Wright & Collin Britt

1
AfterThoughts with Amy: How to Make a Graceful Exit 7:01

26d ago7:01

7:01

In this AfterThoughts with Amy episode, Amy House reviews how to make a graceful exit but adds some more thoughts on how to make sure the person doesn't feel forgotten, what is happening in their short term memory and words of encouragement for those having to take a break from visiting their loved one living with dementia. Amy House, C.D.P. guides…

1
I really wish I had a sibling to help me in my caregiving (Episode 110) 8:08

29d ago8:08

8:08

As an only child, for many years Stephanie thought that having a sibling by her side would really help in the caregiving process. But after working with caregivers for many years, she soon realized that this is not always the case. In today’s episode, Stephanie walks listeners through some scenarios when sibling conflict was more prevalent than sup…

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EP 150: Cracking the biological code of aging with Martin Borch Jensen, Co-Founder and Chief Scientific Officer at Gordian Biotechnology 44:21

30d ago44:21

44:21

0:00 Intro to The Genetics Podcast 01:00 Welcome to Martin 01:35 How a particularly large Indian meal resulted in a book about intermittent fasting and the biology of ageing 05:10 The biological mechanisms behind intermittent fasting, and whether it’s been established to extend life expectancy in humans. 10:13 What we know (and what we don’t) about…

1
The Role of a Death Doula in Dementia Care 1:10:03

1M ago1:10:03

1:10:03

The Role of a Death Doula in Dementia Care Lori La Bey talks with Lori Rizzo who is an end-of-life doula and certified dementia specialist. She provides gentle and supportive guidance to individuals and families navigating the end of life. Learn: What the heck is a Doula? The differences between Hospice and Doulas? Common Challenges families face. …

1
From the Pulpit: Episode 1 19:22

1M ago19:22

19:22

In this FTP, we answer the question "Why do we initiate love towards others?” Preached August 4, 2024 @ New Home Baptist Church in New Home, Texasتوسط LJ Wright, Collin Britt, New Home Baptist Church

1
A Graceful Exit 14:33

1M ago14:33

14:33

A question on Reddit sparks the conversation of how to not distress a loved one when saying goodbye and leaving them, whether at home or in a Memory Care. Amy talks about ways to have a graceful exit and the importance of communication with whomever is looking after the person living with dementia when you go. Amy House, C.D.P. guides care partners…

1
Pushing forward, breaking boundaries and achieving an outstanding career in modeling while caring for her mother with early onset FTD, with Nicole Petrie (Episode 109) 46:02

1M ago46:02

46:02

Nicole Petrie is not a person who is easily describable with words. Using her passion for FTD advocacy and surpassing numerous obstacles and limits in her way, she achieved an outstanding career in modeling, featured in some of the largest publications and on the largest platforms worldwide. In today’s episode, Nicole talks about her journey caring…

1
EP 149: Sequencing 33 million samples to support the UK’s COVID-19 response with Tony Cox, CEO of UK Biocentre 34:16

1M ago34:16

34:16

0:00 Intro to The Genetics Podcast 01:00 Welcome to Tony 02:00 What Tony was expecting going into the role of CEO at UK Biocentre, and how the COVID-19 pandemic changed his plans 03:38 Receiving a phone call from the UK government in March 2020 asking the UK Biocentre to stop all of its projects and focus on sequencing COVID-19 samples 05:12 The UK…

1
THE GERI-GADGETS® APPROACH 47:19

1M ago47:19

47:19

THE GERI-GADGETS® APPROACH Lori La Bey talks with Angela Fairhurst who is a seasoned entrepreneur with a passion for innovation. As the CEO and Founder of Geri-Gadgets®, Angela has carved out a niche in the realm of senior care with her groundbreaking patented products. Angela's expertise spans multiple domains; She’s a seasoned television and even…

1
Where is My Husband? 28:46

1M ago28:46

28:46

In this episode Amy offers suggestions on how to support someone living with dementia that is looking for someone that is deceased. Amy House, C.D.P. guides care partners in understanding how dementia affects the brain. This podcast has recorded questions from listeners. Each episode, Amy unpacks their questions and helps you learn to “think dement…

1
On The Road with HFC | Music, Grief + Dementia with Karen Pearson at Amoeba Music 41:54

1M ago41:54

41:54

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours. We hope this episode finds the people who need to hear it so please share! And don't forget to follow us ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ and ⁠⁠⁠⁠@weareh…

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Moving countries and caregiving for her grandmother with cancer and her mom with dementia as an only child, and the lessons learned along the way, with Katrina Prescott (Episode 108) 40:57

1M ago40:57

40:57

When Katrina Prescott left her commercial production role in New York City and returned to British Columbia as she was faced with the realities of her aging grandmother. Little did she know, almost immediately following her grandmother’s passing, she would become a full on solo caregiver for her mother with FTD. In today’s episode, Katrina takes yo…

1
Practical Tips and Candid Conversations for Alzheimer's and Dementia Family Caregivers 1:05:28

1M ago1:05:28

1:05:28

Practical Tips and Candid Conversations for Alzheimer's and Dementia Family Caregivers Today we will learn about “The Caregiver’s Journey is an innovative and refreshing way to learn how to tackle day-to-day dementia family caregiving challenges with strength, patience, and peace of mind. Using practical tips and candid conversations, Lori La Bey t…

1
EP 148: Advancing veteran health through the Million Veteran Program with Dr. Mike Gaziano, professor of medicine at Harvard Medical School 35:13

1M ago35:13

35:13

0:00 Intro 2:00 Mike’s career prior to the Million Veteran Program (MVP), how Mike got to work on MVP, and important milestones in the project's evolution 8:30 Future goals for the Million Veteran Program in expanding and diversifying the research cohort 11:00 The roles of various omics in advancing the project's development 14:30 The most meaningf…

1
OPEN MIC on Alzheimer's Speaks - Resources, Training, & Insight 52:03

2M ago52:03

52:03

OPEN MIC on Alzheimer's Speaks - Resources, Training, & Insight Today our host Lori La Bey talks with Denise Calhoun is an author and founder of Calhoun Communications and Communicare Connections. Marilyn Raichle is an author and Executive Director of Maude’s Awards. Ken Whalen whose Mother lived with dementia and changed his life. He and his broth…

1
NEW FREE Medicare GUIDE Dementia Program 15:25

2M ago15:25

15:25

Amy has exciting news with a program by Medicare that is free to those living with dementia to help them and their care partners. Amy is going to be starting this program in Minnesota with Tembo Health and is excited about this 8 year commitment to better dementia care in the U.S. Amy House, C.D.P. guides care partners in understanding how dementia…

1
Becoming more aware of our thoughts as caregivers, with Jessica Smith (Episode 107) 37:33

2M ago37:33

37:33

As people, we have thousands and thousands of thoughts each and every day. But do you truly recognize your thoughts and are you aware of the thoughts you are having? How are your thoughts impacting you and your daily life as a caregiver? In this episode, Jessica and Stephanie talk about the importance of noticing our thoughts and how this practice …

1
Afterthoughts with Amy: What to Expect When Grandma is Dying 10:18

2M ago10:18

10:18

In this "Afterthoughts with Amy” episode Amy recommends two books that she recommends having at the bedside of someone who is dying. Amy House, C.D.P. guides care partners in understanding how dementia affects the brain. This podcast has recorded questions from listeners. Each episode, Amy unpacks their questions and helps you learn to “think demen…

1
EP 147: From research to delivering precision medicine in the clinic with Scott Weiss, Professor of Medicine at Harvard University 37:19

2M ago37:19

37:19

0:00 Intro to The Genetics Podcast 01:00 Welcome to Scott 01:55 Scott’s career highlights to date, ranging from epidemiology to the genetics of asthma and chronic obstructive pulmonary disease (COPD) 04:56 How and why Scott decided to transition into genetics 06:30 The advances in our understanding of the genetics of asthma and COPD over the past 2…

1
On the Road with HFC | The Brain Donation Decision with Lauren Miller Rogen 32:29

2M ago32:29

32:29

A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of ⁠⁠HFC⁠⁠ alongside her husband Seth. This is a raw + honest conversation between 3 daughters of dementia about the decision to donate their parents brain's to research. We hope this episode finds the people who need to hear it so please shar…

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On The Road with HFC | A Little Summer Adventure 47:31

2M ago47:31

47:31

Surprise! Here to share all about being on the road with ⁠HFC⁠ AKA Hilarity for Charity. Have no idea what we're talking about? Take a seat. From touching brains at UCI Mind to jamming out at Ameoba music to chatting up strangers on Hollywood Boulevard with Bruno the BRAIN PUPPET... we had ourselves an adventure. Buckle up for some fun + stay tuned…

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Don’t Walk Away, A Care Partner’s Journey 57:39

2M ago57:39

57:39

Don’t Walk Away, A Care Partner’s Journey Lori La Bey talks with Marilyn Raichle is the Executive Director of Maude’s Awards for innovation in Alzheimer’s Care. In 2009 she became a caregiver for her mother Jean, and together they navigated a fulfilling life with dementia. She is also the author of the book, Don’t Walk Away, A Care Partners’ Journe…

1
What to Expect When Grandma Is Passing 20:00

2M ago20:00

20:00

In this episode Amy answers a question about what to expect when someone is in the dying process. Amy House, C.D.P. guides care partners in understanding how dementia affects the brain. This podcast has recorded questions from listeners. Each episode, Amy unpacks their questions and helps you learn to “think dementia.” This leads to better quality …

1
Afterthoughts with Amy: Home Alone & Missing Meals and Medications 12:32

2M ago12:32

12:32

In this "Afterthoughts with Amy” episode Amy continues to address a question from a listener concerned that someone living with dementia at home may forget to eat and not take their medications. Amy talks further about therapy assessing the needs of the person regarding the stage of dementia the person is living with. Amy House, C.D.P. guides care …

1
Let’s talk about the driver’s license (Episode 106) 15:38

2M ago15:38

15:38

The driver’s license and cognitive or physical impairment. Something that, unless you’ve experienced it, you can never fully understand. The battle and the ethics and the nuances to exploring safety vs. autonomy and taking the path of least resistance. What in the world do we do when we are faced with the reality that it may be time to confront the…

1
How To Care For Yourself While Caring For Someone Else 1:18:05

2M ago1:18:05

1:18:05

How To Care For Yourself While Caring For Someone Else #Selfcare #StressFactors #EmotionalEating This conversation will give you many tips when caring for another and will also dive into emotional eating what it is, and how to control it. What’s your favorite comfort food? We bet by asking yourself that question alone, you are already thinking abou…

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EP 146: The biology of aging with Austin Argentieri, Research Fellow at Harvard Medical School, Affiliate Member of the Broad Institute, and Research Fellow at Massachusetts General Hospital 43:05

2M ago43:05

43:05

0:00 Intro to The Genetics Podcast 01:00 Welcome to Austin 01:42 What is aging and how should we think about it? 03:50 Discussion of Austin’s recent breakthrough paper on aging, including the questions he set out to answer, and the outcomes of the research 06:32 How Austin’s work focuses on using large-scale population proteomics data to create acc…

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11| Advocating for Your Parent With Dementia While in the Hospital 15:43

2M ago15:43

15:43

UGH! The healthcare system is broken when it comes to the flow of information for dementia (and so many other) patients! Today I'm sharing a few tips that my sister and I have used when our mother has been in the hospital since her FTD diagnosis. There has to be a better way! I'd love to hear from you at mel@themelcogar.com if you have experiences …

1
Entrepreneurial Dreams 27:31

2M ago27:31

27:31

Keeley Grace Collins, Owner of Savvy Socialite talks all things pageant, to business to purpose. Ever wanted to start your own business or compete in a pageant, hear straight from this decorated and determined young, female entrepreneur as she's a true trailblazer. Continuously learning, growing and changing is the key to turning your dreams to rea…

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