Who Knew You Could Live Without Kidneys? {Chronic Illness Podcast}

Invisible Not Broken - Chronic Illness Podcast Network

“Denial? Or I’m just a tough jackass that won’t just die”

— Robert Fukushima Bad Ass With No Kidneys

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Hemodialysis

ACA

Fluids in foods

Hyperphosphatemia

Flavor Boosting Phosphates in food

Artificial Kidney

More about Artificial Kidneys

Kidney transplant rejection

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Robert Fukushima

Age: 56

Gender: Male

Disability: Kidney failure, avascular necrosis of the hip

Age disorder became a daily issue: 24

Is there anything you would do if you were not sick? Travel, eat more, drink more, return to work, garden

What would make living and moving in the world easier for you? Kidney transplant would be the biggest thing

Disability Lifehacks? My biggest thing is to remind myself that I am disabled even if I'm not feeling so. Things take longer, something's can't be the same

Support from family or friends? I have exceptional family and friend support.

Do you find that people do not believe you are sick because of your appearance? Yes

How has this affected you positive or negative? I am one of those people who doesn't care, for the most part, what others think of me.

What are you afraid to tell even the people closest to you? I'm actually a fairly open book, even when sober.

Does the fact that your disease is invisible change how healthcare professionals treat you? No

Best coping mechanism? Denial? Or I'm just a tough jackass that won't just die

What are you the most fearful of and what are you the most hopeful for in the future? The effects of President Trump's effects on society (fear). My biggest hope is to get a kidney and I'll at least be close to feeling well.

Favorite swear word? I'm not sure I do swear

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