The Impact of the Muscular Dystrophy Association: An interview with OAPFF's Bill Matthews

Compounding Change with Shannon Davis

When you see those firemen at the intersection and you wonder what that's all about, it's about raising funds for the Muscular Dystrophy Association. How that works, what happens behind the scenes, and why it makes a difference that you help to "Fill the Boot" is the topic of this episode of the Compounding Change Podcast.

In this episode of Compounding Change, Shannon Davis speaks with Bill Matthews, the Ohio Association of Professional Firefighters (OAPFF ) State Representative for the Muscular Dystrophy Association (MDA).

They discuss the history and impact of MDA, the importance of fundraising efforts like the Fill the Boot campaign, and the significant advances in research and treatment for muscular dystrophy. Bill emphasizes the transparency of MDA's fundraising, where 70% of donations go directly to treatments and advocacy.

The conversation also touches on the mental health challenges faced by first responders and the need for support in addressing PTSD. And of course, the fact that your donations, no matter how small, are making a difference by "compounding change" over time.

Takeaways

-Compounding Change focuses on small actions leading to big results.

-MDA has been raising funds for muscular dystrophy since 1952.

-Fill the Boot is the largest fundraising event for MDA.

-70% of donations to MDA go directly to treatments and research.

-There have been 18 FDA-approved treatments for muscular dystrophy since 2020.

-Community engagement is crucial for effective fundraising.

-Mental health support for first responders is increasingly important.

-MDA coordinates care to make it easier for patients to access services.

-Transparency in fundraising is vital for donor trust.

-Advocacy for individuals with disabilities is a key part of MDA's mission.

Helpful Links:

Ohio Association of Professional Firefighters: https://oapff.org/

Muscular Dystrophy Association: https://www.mda.org/

Shannon Davis: https://www.daviscompoundingchange.com/

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