با برنامه Player FM !
Dwarfism: Raising a Little Person
Manage episode 317041967 series 2820196
EPISODE SUMMARY
Audrey Curwin is the mother of two adult children, Jillian and Benjamin. Audrey was the Assistant Prosecutor in Gloucester County, New Jersey, supervising the domestic violence and sexual assault unit until her retirement in 2006. She was married for 23 years to Michael Curwin, and together, they were the only husband and wife team of first assistant prosecutors in New Jersey.
Audrey does not shy away from calling out what she considers unacceptable attitudes and common preconceptions. She delves into her experience of raising her eldest child, Jillian, who was born with achondroplasia, which is a form of dwarfism. Audrey, her late husband, Michael, and their son, Ben were all born average height. Jillian's diagnosis brought with it a lot of unknowns and fears and opened a window into the world of labels, accessibility, advocacy, alternate perspectives, and unique challenges. Michael and Audrey were always deeply committed to the idea that Jillian should not be defined by her stature, disability, or diagnosis, but by who she was as a human being
Today, Jillian is a strong, witty, intelligent, fashionable, creative advocate. She is host of the podcast, “Always Looking Up.” In this episode, we will hear from Audrey how words matter, the many ways that the entertainment industry has marginalized little people, and how people diagnosed with dwarfism are often left out of the accessibility formula.
FROM THIS EPISODE
Osteogenesis Imperfecta
Osteogenesis imperfecta (OI) is an inherited (genetic) bone disorder that is present at birth. It is also known as brittle bone disease.
https://www.hopkinsmedicine.org/health/conditions-and-diseases/osteogenesis-imperfecta
Skeletal Displaysia
Skeletal dysplasia is the medical term for a group of about 400 conditions that affect bone development, neurological function, and cartilage growth, including its most common form, achondroplasia.
https://www.hopkinsmedicine.org/health/conditions-and-diseases/skeletal-dysplasia
Achondroplasia
Achondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/
Little People of America
https://www.lpaonline.org
The Missing Piece – Animated Shel Silverstein:
https://www.youtube.com/watch?v=4gEjCJOzqXc
The Cracked Pot Children’s Story
https://alltimeshortstories.com/life-the-cracked-pot/
Crip Camp: The Film
https://www.youtube.com/watch?v=XRrIs22plz0
Crip Camp: The Revolution
https://cripcamp.com
FINDING JILLIAN
Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385
Instagram:@jill_ilana, @alwayslookingup.podcast
Website:https://www.jillianilana.com
Email:alwayslookingup227@gmail.com
Find and Follow Carole and Wisdom Shared:
- https://www.caroleblueweiss.com/
- Subscribe to YouTube channel
- Follow and send a message on Facebook
- Follow and send a message on LinkedIn
- Follow on Instagram
- Follow on TikTok
- Follow on Threads
The Wisdom Shared Team
- Audio Engineering by Steve Heatherington of Good Podcasting Works
- Co-Producer and Marketing Coordinator: Kayla Nelson
- Production Assistant: Becki Leigh
44 قسمت
Manage episode 317041967 series 2820196
EPISODE SUMMARY
Audrey Curwin is the mother of two adult children, Jillian and Benjamin. Audrey was the Assistant Prosecutor in Gloucester County, New Jersey, supervising the domestic violence and sexual assault unit until her retirement in 2006. She was married for 23 years to Michael Curwin, and together, they were the only husband and wife team of first assistant prosecutors in New Jersey.
Audrey does not shy away from calling out what she considers unacceptable attitudes and common preconceptions. She delves into her experience of raising her eldest child, Jillian, who was born with achondroplasia, which is a form of dwarfism. Audrey, her late husband, Michael, and their son, Ben were all born average height. Jillian's diagnosis brought with it a lot of unknowns and fears and opened a window into the world of labels, accessibility, advocacy, alternate perspectives, and unique challenges. Michael and Audrey were always deeply committed to the idea that Jillian should not be defined by her stature, disability, or diagnosis, but by who she was as a human being
Today, Jillian is a strong, witty, intelligent, fashionable, creative advocate. She is host of the podcast, “Always Looking Up.” In this episode, we will hear from Audrey how words matter, the many ways that the entertainment industry has marginalized little people, and how people diagnosed with dwarfism are often left out of the accessibility formula.
FROM THIS EPISODE
Osteogenesis Imperfecta
Osteogenesis imperfecta (OI) is an inherited (genetic) bone disorder that is present at birth. It is also known as brittle bone disease.
https://www.hopkinsmedicine.org/health/conditions-and-diseases/osteogenesis-imperfecta
Skeletal Displaysia
Skeletal dysplasia is the medical term for a group of about 400 conditions that affect bone development, neurological function, and cartilage growth, including its most common form, achondroplasia.
https://www.hopkinsmedicine.org/health/conditions-and-diseases/skeletal-dysplasia
Achondroplasia
Achondroplasia is a form of short-limbed dwarfism. The word achondroplasia literally means "without cartilage formation." https://medlineplus.gov/genetics/condition/achondroplasia/
Little People of America
https://www.lpaonline.org
The Missing Piece – Animated Shel Silverstein:
https://www.youtube.com/watch?v=4gEjCJOzqXc
The Cracked Pot Children’s Story
https://alltimeshortstories.com/life-the-cracked-pot/
Crip Camp: The Film
https://www.youtube.com/watch?v=XRrIs22plz0
Crip Camp: The Revolution
https://cripcamp.com
FINDING JILLIAN
Podcast: https://podcasts.apple.com/us/podcast/always-looking-up/id1567615385
Instagram:@jill_ilana, @alwayslookingup.podcast
Website:https://www.jillianilana.com
Email:alwayslookingup227@gmail.com
Find and Follow Carole and Wisdom Shared:
- https://www.caroleblueweiss.com/
- Subscribe to YouTube channel
- Follow and send a message on Facebook
- Follow and send a message on LinkedIn
- Follow on Instagram
- Follow on TikTok
- Follow on Threads
The Wisdom Shared Team
- Audio Engineering by Steve Heatherington of Good Podcasting Works
- Co-Producer and Marketing Coordinator: Kayla Nelson
- Production Assistant: Becki Leigh
44 قسمت
همه قسمت ها
×به Player FM خوش آمدید!
Player FM در سراسر وب را برای یافتن پادکست های با کیفیت اسکن می کند تا همین الان لذت ببرید. این بهترین برنامه ی پادکست است که در اندروید، آیفون و وب کار می کند. ثبت نام کنید تا اشتراک های شما در بین دستگاه های مختلف همگام سازی شود.