Caring for a Wife with Alzheimer's or Dementia

AlzAuthors: Untangling Alzheimer's & Dementia

Caring for a spouse with dementia is a deeply challenging and emotional journey. In this episode, hosts Marianne Sciucco and Christy Byrne Yates bring together three extraordinary guests: Richard Creighton (aka Frank Brown), Scott Rose, and Tio Stib (aka Stephen Miller), who share their personal experiences and hard-earned insights.

Richard Creighton shares his journey caring for his wife Kate, who is in the advanced stages of Alzheimer's. He discusses the daily routines that bring them joy and emphasizes the profound impact of kindness and community support. Richard blogs about their Alzheimer’s journey at Living with Alzheimer’s.com. Learn more about Richard at AlzAuthors.com.

Scott Rose opens up about the heartbreaking realization of his wife Maureen’s cognitive decline due to frontotemporal dementia. He chronicles their experience in his book We Danced: Our Story of Love and Dementia, and highlights the importance of maintaining dignity and understanding communication challenges. Learn more about Scott on AlzAuthors.com.

Tio Stib, who lost his sight around the same time his wife, Maria, was diagnosed with Alzheimer's, offers a unique perspective. He captures their poignant and humorous moments in his book My Dementia Diary: A blind caregiver’s journey with his wife and her dementia, and discusses the cultural differences in dementia care between Mexico and the U.S. Learn more about Tio at AlzAuthors.com.

After the podcast

Purchase We Danced: Our Story oove and Dementia

Purchase My Dementia Diary: A blind caregiver’s journey with his wife and her dementia

Note: We are an Amazon Associate and may receive a small commission from book sales.

Resources mentioned:

Judy Cornish, The Dawn Method

Lingraphica - A device that can help with communication for individuals with speech and language difficulties due to dementia.

Security Camera with Two-Way Speaker - A security camera with a two-way speaker can be used to communicate with a loved one who may have difficulty using traditional communication devices. It allows for verbal interaction and reassurance.

Children's Songs - Using familiar children's songs can help soothe and engage individuals with dementia, providing a sense of comfort and familiarity.

Love and Patience - The most important takeaway is the need for love, patience, and understanding when caring for a loved one with dementia. This includes being patient with family members and caregivers who may have different perspectives on the care process.

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others.

Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

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