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Ep 04 Rita Ross
Manage episode 279276068 series 2819027
محتوای ارائه شده توسط Rachael Stevenson. تمام محتوای پادکست شامل قسمت‌ها، گرافیک‌ها و توضیحات پادکست مستقیماً توسط Rachael Stevenson یا شریک پلتفرم پادکست آن‌ها آپلود و ارائه می‌شوند. اگر فکر می‌کنید شخصی بدون اجازه شما از اثر دارای حق نسخه‌برداری شما استفاده می‌کند، می‌توانید روندی که در اینجا شرح داده شده است را دنبال کنید.https://fa.player.fm/legal
This week’s podcast guest is fellow Reverse Rett Co-Founder and Trustee, Rita Ross.
Rita and I met over a decade ago, when a small group of parents formed the charity back in 2009.
Apart from the fact that Rita had a successful career in banking as well as a young daughter, Frankie who has Rett, I didn’t really know anything about her. Even after all these years of shared interest in our common goal, we still barely ever get the time to sit down and talk.
In this episode, we talk about now teenage Frankie and how it is having a child or adolescent with Rett to care for, whilst trying to hold down a job.
Rita shares openly about Frankie’s early health concerns, her diagnosis of Rett and the love and support which carried the family through.
We talk about the hope that Rita has for Frankie’s future, the tenacity required for living life with Rett (for parents too) and the vitality of validating Frankie’s frustration and all the dreams she has inside herself.
It was a pleasure to spend this time with Rita and to hear more about how Frankie is getting on.
We welcome your feedback. Let us know what you think of the podcast by leaving a review. Don’t forget to subscribe. Thanks for listening.
More information about Oppositional Defiant Disorder
Information about referral to the Centre for Personalised Medicine in Rett Syndrome
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