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Miller-Dieker syndrome and celebrating the life of Lily, with Priyanka Saha
Manage episode 404522835 series 3555830
محتوای ارائه شده توسط Dr Golly. تمام محتوای پادکست شامل قسمت‌ها، گرافیک‌ها و توضیحات پادکست مستقیماً توسط Dr Golly یا شریک پلتفرم پادکست آن‌ها آپلود و ارائه می‌شوند. اگر فکر می‌کنید شخصی بدون اجازه شما از اثر دارای حق نسخه‌برداری شما استفاده می‌کند، می‌توانید روندی که در اینجا شرح داده شده است را دنبال کنید.https://fa.player.fm/legal
When Priyanka Saha attended her final pregnancy scan, she was told that her baby wouldn’t live very long. Lily was diagnosed with Miller Dieker Syndrome - a rare disorder that causes the outer part of a child's brain (the cerebral cortex) to be smooth causing severe developmental issues. Despite the heart-wrenching prognosis and knowing that Lily only had a limited time on earth, Priyanka and her husband made it their mission to make every day special.
LINKS
https://www.instagram.com/the_lilyflower/
https://www.instagram.com/veryspecialkids/?hl=en
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