Breath Taking: Jessica Fein on Presence, Advocacy, and Navigating MERRF Syndrome

Comforting Closure - Conversations with a Death Doula

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In this episode of Comforting Closure - Conversations with a Death Doula, host Traci Arieli sits down with Jessica Fein, author of Breath Taking, to discuss her family's profound journey caring for her daughter Dalia, who was diagnosed with the rare disease MERRF syndrome (Myoclonic Epilepsy with Ragged Red Fibers). Jessica shares the emotional challenges of becoming her daughter's advocate, the process of navigating a complex medical system, and the lessons she learned about staying present.

Together, they talk about how to find moments of peace, joy, and vulnerability even during life’s most overwhelming challenges. This episode provides a look at how we can balance grief and joy, and how we are capable of more than we ever imagined.

Links/Resources:

• Jessica Fein’s Website: https://www.jessicafeinstories.com
• Breath Taking by Jessica Fein: Available wherever books are sold
• Host: Traci Arieli’s Website - https://www.comfortingclosure.com