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S1 E3 - Rare Disease Day with Helena Baker
Manage episode 407172594 series 3558520
محتوای ارائه شده توسط Karger Publishers. تمام محتوای پادکست شامل قسمت‌ها، گرافیک‌ها و توضیحات پادکست مستقیماً توسط Karger Publishers یا شریک پلتفرم پادکست آن‌ها آپلود و ارائه می‌شوند. اگر فکر می‌کنید شخصی بدون اجازه شما از اثر دارای حق نسخه‌برداری شما استفاده می‌کند، می‌توانید روندی که در اینجا شرح داده شده است را دنبال کنید.https://fa.player.fm/legal
In this episode of Karger’s The Waiting Room Podcast, we talk with Helena Baker, CEO and co-founder of the Rare Disease Nurse Network (RDNN). Helena shares with us the excellent work that the RDNN is doing for rare disease patients, including its ambition to becoming the ‘Macmillan of Rare Diseases’ and its determination to create better services for those affected by rare diseases and improved information for nurses. For more information about the RDNN please do visit www.rdnn.org. For more podcast episodes from Karger including additional interviews on the subject or rare diseases visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com
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