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Rare Disease Champion
Manage episode 451450183 series 2368229
Today's episode was way more than I expected. Our guest is Deb Ayres of the Avalon Foundation. Avalon is Deb's daughter who was born with a rare condition called HPP. Fast forward to last week, Avalon has the same life expectancy as the rest of us and was given quite an honor from the Association of Fundraising Professionals.
First, why does that school bus stop so much, such a let down, yet again from the Rockets, and Party in the Park is about to return.
729 قسمت
Manage episode 451450183 series 2368229
Today's episode was way more than I expected. Our guest is Deb Ayres of the Avalon Foundation. Avalon is Deb's daughter who was born with a rare condition called HPP. Fast forward to last week, Avalon has the same life expectancy as the rest of us and was given quite an honor from the Association of Fundraising Professionals.
First, why does that school bus stop so much, such a let down, yet again from the Rockets, and Party in the Park is about to return.
729 قسمت
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