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About Our Discussions: At Chronic Love, in collaboration with our generous featured guests, we share candid discussions about living with and beyond chronic illness with the intention of showing the humanity, the wholeness of life impacted by chronic disease and chronic conditions. We hope that these conversations can offer a needed counterpoint to the often sterile portrayals of illness and treatment in the service of helping those living with illness to feel less alone; to offer supportive ...
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Paralyzed by Guillain-Barré syndrome (GBS) as a new mom, Holly shares with us the heartbreak she felt when physical bonding with her baby would suddenly change as well as the beautiful ways she and her daughter were able to find paths to communicate and bond, despite her paralysis. Please note that this discussion has been extracted from video reco…
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Justin shares the advice he would offer his younger self on overcoming the most emotionally challenging moments of a cancer diagnosis and treatment, now more than ten years in remission from stage III Hodgkin lymphoma. In this episode, Justin offers powerful and insightful advice on connecting with the present moment, on the impermanence of emotion…
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On Dating, Relationships, Finding Love During Cancer Treatment - Justin’s Hodgkin Lymphoma Story, Continued
7:50
Justin shares with us his experience of chatting, meeting, and falling in love with his partner over the same span of time when he was receiving his diagnosis and undergoing treatment for Hodgkin lymphoma. Join us for this discussion which touches on the complexities of dating, relationships, and finding love during cancer and in which Justin share…
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Hodgkin Lymphoma, Life Disrupted at 24 - Justin Shares on Being Newly Sober and Out When Diagnosed
5:36
Justin was on the precipice of reclaiming his innocence after coming out, becoming sober from alcohol after college, and then building anew when he would face the untimely life disruption of a cancer diagnosis. Follow along as Justin, now beyond a decade out from his Hodgkin lymphoma diagnosis, lets us into his world. Stay tuned as he lends us pers…
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Guillain-Barré Syndrome, From Symptoms to Diagnosis - Holly Shares the Beginning of Her GBS Story
10:37
Seventy-two hours after noticing a burning sensation in her finger, Holly was paralyzed from the neck down, in ICU, and on life support. Holly, now beyond a decade out from her Guillain-Barré syndrome diagnosis, shares some of her earliest experiences leading up to her diagnosis and treatment. Please note that this discussion has been extracted fro…
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Hodgkin Lymphoma, From Symptoms to Diagnosis - Justin Shares the Beginning of His Cancer Story
7:12
Justin, now beyond a decade out from his Hodgkin lymphoma diagnosis, shares some of his earliest experiences leading up to his diagnosis and treatment, including his early symptoms, a terrifying initial diagnosis, a life-saving procedure, and the miracle treatment that was not supposed to work, but which opened the door to save his life. Please not…
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Jaymie shares life-saving pointers on how to really be seen and attended to by our doctors, on how to receive the healthcare we all deserve but which we sometimes have to fight for, and on how we can use “aggressive curiosity” to overcome the cards stacked against us, all of which she was forced to figure out for herself as a young Black woman batt…
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Eva, Laura, and Robin discuss the need to shift priorities, to give energy to the things that matter most in life when faced with a life-threatening illness. Laura shares relationship challenges associated with mismatched expectations for where waning energy should be spent. Please note that this discussion has been extracted from video recordings …
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Jaymie discusses the importance of self-advocacy. She reflects on frustrations with prior medical care which led her to routinely drive two hours out of state to a different healthcare system in order to receive healthcare that meets her needs, healthcare that she deserves. Please note that this discussion has been extracted from video recordings t…
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Jaymie discusses what it’s like to remove liters of fluid from her lungs (PleurX catheter, lung drains to treat pleural effusion) while waiting for her lung cancer treatment to begin working. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we …
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Jaymie talks about her delayed diagnosis. She encourages us to listen to our bodies and to advocate for ourselves when we know something is really wrong. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by stayi…
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Jaymie shares important insights about coping with a range of emotional experience as she navigates life and returns to thriving with a stage IV lung cancer diagnosis. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some…
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Jaymie generously shares her lung cancer story. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love by staying tuned at https://www.youtube.com/@chroniclove?sub_confirmation=1. DISCLAIMER: Chronic Love, Inc. conten…
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Together, Laura and Robin discuss misconceptions about “just cutting the tumor out” and share their experiences of what it is like to live with the aftermath of breast cancer diagnoses and treatments. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, …
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Together, Laura and Robin discuss their experiences of finding their breast cancer tumors. Laura shares what it was like to distinctly feel her tumor grow aggressively over the span of a month but then also shrink during her chemotherapy treatment. Please note that this discussion has been extracted from video recordings that can be found on www.ch…
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Laura shares considerations of identity and concerns for long-term well-being that informed her decision to “go flat.” Robin highlights that even with reconstruction after double mastectomy, nobody is putting back what was there before. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.or…
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Together, we discuss the overwhelm and guilt associated with receiving support during illness. Laura and Eva share their helpful tips to manage these experiences. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some love…
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Eva and Laura broaden our sensitivity to the complexities of diet and cancer from the perspectives of people with cancer. They further share what they have needed from loved ones to feel seen and heard on this front. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our Y…
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Laura and Eva discuss how others offered obligation-free support and showed up in just the right ways while they were in treatment and facing the fallout of cancer. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our YouTube channel, where we welcome you to show some lo…
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Eva and Laura broaden our sensitivity to the complexities of work and cancer from the perspectives of people with cancer. They further share what they have needed from loved ones to feel seen and heard on this front. Please note that this discussion has been extracted from video recordings that can be found on www.chroniclove.org/videos or on our Y…
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