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This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and promising news regarding the management and treatment of sickle cell disease. Learn about the past, present and future of sickle cell, and join us in the figh ...
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Join us for an engaging, informative, and supportive journey as we explore the realities, breakthroughs, and triumphs of living with sickle cell disease. Our podcast is dedicated to creating an awareness about this condition while also advocating for patients' rights and seeking solutions to improve their quality of life. Subscribe now to stay informed!
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Discover the incredible story of a young man and his bone marrow transplant experience. In this episode, we hear from a courageous young man and his supportive father as they recount their transformative journey through a bone marrow transplant that cured his sickle cell disease. Despite facing numerous obstacles and enduring many hardships, their …
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On this edition of Blood, Sweat and Cells: Real Talk About Sickle Cell Disease, We delve into the unique challenges women face when managing sickle cell disease, from menstrual issues to fertility concerns. Join us as we have a candid conversation with Dr. Sheinei Alan, an expert in sickle cell disease and its impact on women's health. Discover wha…
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This sickle cell awareness month, the Heart of Gold Sickle Cell Foundation of Northern Virginia invites you to discover the significance of knowing your sickle cell status. Our guest, Dr. Sheinei Alan, sheds a light on understanding the distinction between sickle cell disease and the sickle cell trait. We'll explore family planning for couples who …
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In this heartfelt episode, join host Valerie Bey and her guest Dr. Clarence Pearson as they dive into a deeply moving conversation with a courageous father who opens up about his journey of raising a daughter with sickle cell disease. Through his candid storytelling, listeners gain valuable insights into the profound challenges and triumphs faced b…
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In this podcast we delve into the intersections of Juneteenth and World Sickle Cell Day in highlighting health disparities and promoting equity in our community. In addition, we'll take you on a fascinating audio tour of the high-tech and innovative Adult Sickle Cell Center at Inova Hospital, providing you with an exciting glimpse into the latest a…
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The final episode of Bringing Sickle Cell Disease to Life explores the concepts of putting research into practice, implementation science, and advocacy. Dr. Wally Smith hears from sickle cell pioneer and researcher Dr. Marilyn Hughes Gaston about early research with hydroxyurea. Sickle cell disease (SCD) provider and warrior Dr. Titilope Fasipe tal…
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Sickle cell disease (SCD) affects people all over the world. In this episode, Dr. Wally Smith interviews Dr. Russell Ware, an SCD provider and researcher who assembled an international team of experts to participate in global clinical trials. International SCD researcher Dr. Solomon Ofori-Acquah shares the story of how he got into research and how …
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Not enough hematologists specialize in sickle cell disease (SCD) to reach all the people who need care. Host Dr. Wally Smith talks with Dr. JJ Strouse about outreach programs he has developed to reach individuals in rural communities. SCD expert care provider and researcher Dr. Michael DeBaun describes how he involves physicians from many other dis…
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Researchers, patients, and providers discuss the importance of a quality “medical home” for people living with sickle cell disease (SCD). ASH Research Collaborative Community engagement Manager Shauna Whisenton, an SCD warrior, describes the benefits she experienced once she found a medical home. SCD experts share their experiences creating treatme…
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Translational research discoveries have been critical in improving care for people living with sickle cell disease (SCD). In this episode, Dr. Courtney Fitzhugh shares her passion for translational research and how it can directly help individuals living with SCD. Kyle Smith describes how acute chest syndrome impacts his day-to-day activities. Dr. …
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Emergency departments (ED) are inevitable for people living with sickle cell disease (SCD). Many clinicians in the ED, however, misunderstand the disease and perceive patients as drug seekers. This episode explores how education can help shift attitudes and how proper data and support can improve clinics. Shauna Whisenton describes an experience th…
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Structural racism and implicit bias are prominent in the care of people living with sickle cell disease (SCD). Dr. Marilyn Hughes Gaston shares how she unwittingly showed bias early in her career and learned from her mistake. Host Dr. Wally Smith talks to several people living with SCD who have experienced bias first-hand, including ASH Research Co…
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Severe pain, which is the most common complication for people living with sickle cell disease (SCD), severely affects their quality of life. This episode starts with a passage about the excruciating pain a person living with SCD endures read by SCD care and research pioneer Dr. Marilyn Hughes Gaston. Host Dr. Wally Smith talks to Kyle Smith, an adv…
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In the final episode of Season 1, Dr. Courtney Fitzhugh encourages medical students interested in sickle cell disease to get involved and reach out to a mentor. She shares her journey to becoming a physician scientist with a lab at the National Institutes of Health where groundbreaking research is translated into patient care. Learn about joining A…
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In this episode, Dr. Betty Pace explains her path to conducting research in sickle cell disease. As a clinician and researcher, she shares how she was able to bring the clinical perspective to the lab. Learn some important techniques to secure an independent investigator status and overcome challenges including concerns about financial security. Le…
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Young individuals living with sickle cell disease eventually age out of the pediatric units and struggle as they transition to adult care. In this episode, we hear from Kyle, a person living with sickle cell disease, about his experience transitioning from pediatric to adult care. Dr. James Eckman and Dr. John J. Strouse explain the typical problem…
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In the past, children with undiagnosed sickle cell disease were at risk of dying in as little as nine hours of sepsis. In this episode of Bringing Sickle Cell Disease to Life, we hear more from Kyle, an individual living with sickle cell disease. Dr. Wally Smith interviews Dr. James Eckman about the importance of newborn screening. Dr. Russell Ware…
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In the first episode of Bringing Sickle Cell Disease to Life, Kyle Smith, an individual living with sickle cell disease and a leader in community advocacy, will share his story with us. Our host Dr. Wally Smith interviews a legend in the field Dr. Clarice Reid on the history of sickle cell disease. She describes two events that helped launch sickle…
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Coming soon: This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and…
…
continue reading
