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What does the future relationship between Germany and the United Kingdom look like? Staying Connected highlights common interests and opportunities for German-British cooperation through wide-ranging discussions between experts and people with a special connection with both countries.
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At TERRA API, we are on a mission to enable developers to connect and create solutions by using health data. Kyriakos Eleftheriou, the founder and CEO of Terra API speaks with some of the best founders and CEOs in the space of health and fitness, to learn how the best are building their businesses.
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Introduction: Bringing a visionary, never-heard-before crossbreed of progressive, electro& trance to his musical activities, Holland’s Jochen Miller embodies thenew decade’s freeform, Big Room sound. From his earliest turntable days he’s disregarded traditional EDM borders to bring countless global dancefloors to critical mass.A spinner without parallel, he’s comprehensively conquered his home-country,playing tent-pole events including Trance Energy, Mysteryland & Dance Valley before venturi ...
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Today, we’re going to talk to Carlos Morales, who lost one of his children, Kaitlyn, to an aortic dissection in 2023 at the age of 14. This aortic dissection led to their diagnosis of Loeys-Dietz syndrome type 2, and also revealed that Carlos has Loeys-Dietz syndrome, mosaically. Quick note: In this episode, Carlos will share in detail what happene…
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Today, we’re going to talk to Carmen David, who is going to share her experience with an aortic dissection after the delivery of her second daughter, her experiences recovering from that physically and emotionally, how she handled the information of two VUS’s, or Variants of Unknown Significance, and what she’s been doing since her dissection to ra…
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Today, we’re going to talk to Bella Marin, who was previously on the show to talk about her story with VEDS, or Vascular Ehlers-Danlos syndrome. In today’s episode, she is returning to the show to talk about her recent experience with a bowel perforation and resulting complications. Bella can be found at @in_VEDStigator on Facebook, and @in_VEDS_ti…
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In this episode, we talk to Marisa Hart, who was diagnosed with Marfan syndrome as a child. Marisa has an extensive family history and shares how Marfan has impacted her life, from sports, to seeing family members deal with Marfan, and her daily life and own surgery for pectus excavatum. Content warning: Brief discussion of suicide. Find more infor…
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In this conversation, Kyriakos discusses with Vadim - CEO of Bioniq on his journey from being a professional athlete to leading the personalised health supplement company.Vadim shares insights on fundraising challenges, the significance of early adopters, and the impact of celebrity endorsements, particularly https://twitter.com/Cristiano Ronaldo's…
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Today we’re going to talk to Tammy Asplund about her story with Loeys-Dietz syndrome, which she was diagnosed with at 52 after her son found out he had an aneurysm and also needed open heart surgery. Once he was diagnosed, it explained their family history and Tammy got tested and had open heart surgery as well. Find more information, including sup…
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Today we’re going to talk to Ryan Rodarmer, the director of The VEDS Movement, about his personal experience with aortic aneurysm and dissection, and his career as a genetic counselor working with connective tissue conditions and VEDS prior to his role at the Marfan Foundation. Find more information, including support groups and webinars, about VED…
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Claudia Arbelaez joins the show to share her story with Vascular Ehlers-Danlos syndrome (VEDS), which she was diagnosed with in 2020 after a kidney infarction and vascular rupture. A couple years after her diagnosis, she also had a colon rupture. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at t…
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Bridget Porter (Metz) joins the show to share her son, Connor’s, story with Loeys-Dietz syndrome, which he was diagnosed with after he died of an aortic dissection at the age of 13. Connor was seen by a geneticist a few years before he died, but was told there was no need for a genetic test. Bridget and her family have been involved in efforts to r…
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On the first Terra Health day, ⁠Kyriakos⁠ - CEO of ⁠Terra⁠, is joined by ⁠Lance Armstrong⁠, who shares his story with 300 Y Combinator founders, live from San Francisco. Lance shares his remarkable journey from a young athlete to a world-renowned cyclist, detailing his early struggles, his battle with cancer, and his eventual rise to fame. He discu…
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“Don’t Die is the only practically relevant framework that is equal to this moment in time considering the birth of superintelligence.” For the first Terra Health Day, Bryan Johnson educated 300 Y-Combinator founders about longevity. Here’s the full discussion: 03:20 The thought experiment from the 25th century 04:00 Transitioning from Die to Don’t…
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"The best companies are bought, not sold." In the latest podcast, Kyriakos is joined by @RealAnttoni, CEO of @veristable, the company that helps users discover better metabolic health, who just completed an acquisition with @ouraring. 03:55 How Veri Started11:00 The first Growth Hack12:10 The First Launch15:45 Evolution of the Product22:07 Meal Sco…
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Today we will be hearing from Debbie Vaughan about her experience with Vascular Ehlers-Danlos syndrome (VEDS) and her late husband, Josh’s, story with VEDS. Josh passed away not long after their son was born. Near the end of the interview, we’ll also hear how she’s seen things change for people with VEDS in the last 27 years. In the episode, we men…
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Today we’re going to hear from Melanie Case, who was diagnosed with Marfan syndrome in 2002, a couple years after she had a thoracic aortic dissection following the delivery of her second child. This aortic dissection went undiagnosed for about two years, and after it was discovered, it led to her diagnosis with Marfan syndrome. Find more informati…
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'If you find cancer too early, we as doctors might not know what to do with it.' In the latest podcast, we discuss with @andrewlacy, founder and CEO of @prenuvo, the company that helps find conditions before they become crises.01:30 Midlife crisis06:40 the ‘Secret Society’08:30 Quote from a doctor: ’ If you find lung cancer too early, I don’t know …
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In this episode we’re going to talk to Nancy Billon, who was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) with a combination of her medical history and a genetic test that revealed a VUS on COL3A1. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and …
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In this episode we’re going to talk to Hugh Cox, a member of the Vascular Ehlers-Danlos Syndrome community diagnosed just in 2022. He was first misdiagnosed with a clotting disorder. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. You can also…
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In this episode we’re going to talk to Maggie Buckley, a long-time member of the community who was diagnosed with hypermobile EDS when she was a child. Recently, a genetic test revealed she has the gene mutation for Loeys-Dietz type 5. If you want to know what an okapi is, check out this info here. Find more information, including support groups an…
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Erin Langley was tested for VEDS (Vascular Ehlers-Danlos Syndrome) due to some concerning family history, but her results came back as a Variant of Unknown/Uncertain Significance, or VUS. In this episode, she shares her experience with those results and how she’s found support in the meantime. Link to the articles mentioned in the interview: The kn…
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Amber Taylor is the Chief Digital Product Officer at Les Mills. In a discussion with Kyriakos , Amber discusses about her journey with Amazon, Nike, and joining Les Mills, the company behind the fitness classes offered in over 20,000 clubs across more than 100 countries. Chapters 00:00 Introduction and Background 03:18 Training for Marathons and Me…
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Carlos Horn was diagnosed with VEDS (Vascular Ehlers-Danlos Syndrome) last year, in 2023. With a history of multiple aneurysms and a stroke, a doctor sent him to a vascular specialist who wanted to rule out genetic causes. In this episode, Carlos talks about the events that led to his diagnosis, how his lifestyle has changed since, and his hopes fo…
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Kyriakos is discussing with Sean Harrington , VP of Teamworks, and founder of Notemeal. Sean Harrington shares his journey from working with the New England Patriots to starting his own company, which was eventually acquired by Teamworks. He discusses the importance of technology in sports, particularly in areas like nutrition and performance track…
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In our latest podcast Kyriakos is joined by Mike Nemke co-founder of Function Health. He discusses his background as a Green Beret and the leadership lessons he learned. He emphasizes the importance of building teams and trusting others to maximize outcomes. He also shares the founding story of Function Health, including how he met his co-founders …
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After my recent renal dissection, kidney infarction, and iliac dissection with Vascular Ehlers-Danlos Syndrome (VEDS), I wanted to know what emotional recovery was like for others after medical events. This episode features clips of people with VEDS, Marfan, and Loeys-Dietz syndromes, sharing what emotional recovery was like for them after diagnosi…
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In this podcast, we are joined by John Anthony, who led the teams at Swim.com, WHOOP, Google Health and others. He created and led technologies such as AI-based swim trackers, WHOOP's Live Heart Rate functionality, Google's Health connect, and many others. Chapters 00:00 Introduction 04:19 The AI wearable for swimmers 10:22 Joining Whoop and the Im…
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In this conversation, Kyriakos Eleftheriou is joined by Lucia Huang , CEO of Osmind. They discuss the founding story, the problem in mental health, fundraising, and many more. Chapters 00:00 Intro 03:03 Founding Story 11:31 User Feedback 21:19 The Y Combinator Experience 23:14 Go-to-Market Strategy 23:50 Tracking Patient Outcomes and Interim Feedba…
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My brother, Jacob Frederick, rejoins the show. Our last interview was only a couple weeks before my recent renal artery dissection/kidney infarction and iliac dissection. In this episode, we talk about both of our experiences with those medical events in November and the aftermath. Find more information, including support groups and webinars, about…
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Today we’re going to hear from Sheila Felske, who is joining us to share her experience with Vascular Ehlers-Danos Syndrome (VEDS), which she was diagnosed with last year. Sheila had her first carotid artery dissection soon after her first daughter was born, and then had an achilles tendon rupture after her second daughter was born. Then in 2022, s…
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Deb Kruk was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in her mid-60s, following the loss of her 40 year old son, Brian, to an aortic dissection. They did not know Brian had VEDS when he died. In this episode, she shares that experience, processing her own diagnosis, things she loved about Brian, and more. Find more information, includi…
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Doug Sweeny is the Chief Marketing Officer at ŌURA Health, home of the Oura Ring. He oversees the company's marketing, growth, and brand. In the latest discussion with Kyriakos, they discussed about marketing, brand, and his journey with ŌURA. Doug has led iconic brands like One Medical, Nest, Levi's, Adidas, and General Motors EV1. 0:00 - Introduc…
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Betsy Matarrita was born and raised in Costa Rica, and was diagnosed with Marfan syndrome when she was a young child. Growing up, she didn’t know anyone else with Marfan syndrome, and they had to come to the US to get medical care for scoliosis as a child, when her and her family did not speak English. In this episode, she shares her medical story,…
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In this conversation, Kyriakos is discussing with Eswar, the Chief Technology Officer for Equinox. They discuss Eswar's journey at Equinox and the company's technology and user experience evolution. They also delve into the role of data in enhancing the athlete experience and personalizing workouts. The conversation covers various topics related to…
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Roe Nania shares her family’s story with Vascular Ehlers-Danlos syndrome (VEDS). Roe’s brother, Angelo, was the first person diagnosed in the family, and died from an aortic dissection in 2019. After his death, more members of the family got tested and diagnosed, and it’s assumed that her father also died from VEDS. Find more information, including…
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Kevin Kroeker shares his story with Loeys-Dietz syndrome, which he was diagnosed with in his 50s after a spontaneous coronary artery dissection (SCAD). His Loeys-Dietz diagnosis explained a prior event with his carotid artery, and uncovered a larger family history of Loeys-Dietz. Find more information, including support groups and webinars, about V…
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In our latest podcast, Sokratis, Numan founder and CEO, discusses the company's evolution in the pursuit of improving Men's Health.He outlines Numan's growth, product innovations, growth channels, and many moreSokratis looks ahead to technology's potential to revolutionize healthcare with personalized insights and interventions. More about Numan ► …
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Tyler Farley was originally on Staying Connected in 2022 to share his story with VEDS or Vascular Ehlers-Danlos Syndrome. He returns in this episode to share his recent experience with a bowel perforation in the fall of 2023, and how he is moving forward, as well as his experience meeting other people in person with VEDS, Marfan, and Loeys-Dietz at…
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In the latest episode with Kyriakos, we explore InstaLab with Adora Cheung, who transitioned from personal health struggles to creating a pioneering preventative healthcare company. Adora discusses how InstaLab is altering the landscape of health diagnostics by making advanced testing more accessible and understandable for everyone. She emphasizes …
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In this episode with Kyriakos from Terra, the CEO of the OK Capsule, Dr. Andrew Brandeis shares his journey from naturopathic doctor to founder of a company revolutionizing personalized supplements. Dr. Andrew's transition from healthcare practitioner to tech entrepreneur highlights the potential of technology to tailor health solutions. His vision…
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Dave Wright, the founder of MyZone, discusses with Kyriakos the journey of creating MyZone and the challenges of manufacturing wearable technology. He shares insights on finding the right manufacturer in China and the importance of building strong relationships. Dave also explains the unique B2B approach of MyZone, connecting consumers with fitness…
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In this interview, Kyriakos connected with Wulf Glatz, the founder of CORE, to discuss his wearable technology that tracks the core body temperature to optimize athlete performance. Here are some of the highlights of the conversation: Glatz explains that unlike skin temperature, which varies a lot, core temperature gives a reliable measure of someo…
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Liam Nelson was diagnosed with Marfan syndrome when he was 11 years old. In this interview, we talk about how he handled his diagnosis, his career in film and comedy, his involvement in the Marfan community, and more. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdiet…
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Join Kyriakos from Terra API as he delves into an extensive interview with Kris Gethin , renowned bodybuilder and founder of Kaged Muscle. This hour-long conversation covers Kris's journey in the fitness industry, his pivotal role at bodybuilding.com, insights on biohacking, and the founding principles behind Kaged Muscle.0:00 Intro2:10 Racing moto…
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Lauren Atherton was diagnosed with Loeys-Dietz syndrome after an aortic dissection when she was 28 years old. In this interview, we talk about that dissection, how she’s dealt with her diagnosis, and more. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and m…
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Michelle Lucena was diagnosed with VEDS, or Vascular Ehlers-Danlos syndrome, after two carotid artery dissections. In this interview, we talk about how these dissections affected her military career, how she’s handled her diagnosis, and how she’s held onto her passion of physical fitness. Find more information, including support groups and webinars…
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Melanie Strong shares her journey at Nike and the inception of NEXT VENTŪRES. Starting at Nike in 2002, Melanie's role evolved from managing non-e-commerce websites to spearheading Nike's digital products, including the Nike Run Club app. She recounts Nike's strategic shift in soccer, initially dominated by Adidas, and how Nike disrupted the market…
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Taborski McClellen was diagnosed with Marfan syndrome between 12-13 years old. In the time since his diagnosis, he’s had two retinal detachments, a lung collapse, and an aortic dissection. In this interview, he talks about his story with Marfan, and his book, Living with Marfan syndrome in the Hands of GOD. Find more information, including support …
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In this interview, Ulrich Schoberer, the founder of the cycling power meter, delves into his journey from a medical engineering student and cyclist to an innovator revolutionizing cycling training. He shares the inspiration behind creating the power meter, addressing the gap in cycling performance metrics. Schoberer details the technical challenges…
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I was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS), in 2017. In this episode, I’m joined by my brother, Jacob Frederick, to talk about his experience with my diagnosis and hospitalizations. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.o…
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Allison’s son, James, was diagnosed with Marfan when he was 3 years old, following a lens dislocation. James is now 8 years old, and in this episode, Allison talks about his diagnosis story, how they handle communicating Marfan with James, research, navigating the US healthcare care system, and more. Find more information, including support groups …
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Grace Barnhart was diagnosed with Marfan syndrome when she was 4 years old. She’s also a caregiver to her dad who has Marfan syndrome. In this episode, she talks about growing up with Marfan, getting involved in advocacy and community at a young age, medical events she’s dealt with of her own and of her dad’s, and how she lives her life as a young …
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